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Epidermolysis Bullosa- EB

Epidermolysis bullosa (EB) is a rare and serious genetic illness, non-contagious, for which no cure has been found and it is characterized by acute sensitivity in the skin and mucosal membranes. Patients with EB develop blisters and sores in response to the minor types of skin trauma, a mere touch upon or pressure to their skin, or even just changes in weather. These lesions can be both external and internal and can appear inside the mouth, in the esophagus and the rectum. Patients of EB are affectionately referred to as “butterflies,” a reference to their fragile skin.

 “Our mission is to alleviate the suffering of Brazilian kids with EB, increasing their quality of life, whether through material and emotional support or through information and awareness.” 

We are passionate about our cause. We take EB and our Kid's needs very seriously. We are bound by: 

 

CARE, DEDICATION & COMPASSION

 

Financial support is what makes our work possible and we invite you to join our network of supporters. Any amount is welcome!

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sos@sosebkids.com

Photography by
Aline Inagaki | Marcela Melo | Vanessa Brandhuber

SOS EB Kids Corp
New York, NY, United States
EIN 47-4973411
PayPayl / Zelle / QuickPay: donations@sosebkids.com

Associação SOS EB Kids

Brasília, DF, Brasil

CNPJ 37.998.581/0001-02
Banco do Brasil
Ag. 3476-2 CC. 92103-3