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Epidermolysis Bullosa- EB

Epidermolysis bullosa (EB) is a rare and serious genetic illness, non-contagious, for which no cure has been found and it is characterized by acute sensitivity in the skin and mucosal membranes. Patients with EB develop blisters and sores in response to the minor types of skin trauma, a mere touch upon or pressure to their skin, or even just changes in weather. These lesions can be both external and internal and can appear inside the mouth, in the esophagus and the rectum. Patients of EB are affectionately referred to as “butterflies,” a reference to their fragile skin.

To alleviate the suffering of Brazilian kids with EB, increasing their quality of life and that of their loved ones, whether through material and emotional support or through information and awareness.

We are passionate about our cause. We take EB and our Kid's needs very seriously. We are bound by: 

 

CARE, DEDICATION,

INTEGRITY & DIGNITY

 

Financial support is what makes our work possible and we invite you to join our network of supporters. Any amount is welcome!